Paralympics Meanderings

How fabulous are the Paralympics?

I love seeing how the athletes have worked so hard and triumphed over such adversity. They are inspirational. It's quite staggering to see how far some of them have come in their lives and their sport. And - well, they're fantastic athletes.

However, there is something of a backlash amongst the disabled and chronically sick community, especially as regards to one of the Paralympic sponsors, Atos Healthcare. One has to wonder why a company that has a £112 million contract to assess sick and disabled people for DLA and ESA, yet costs the taxpayer £60 million in appeals against decisions, 40% of which are successful, have been allowed to sponsor such an event. Especially considering the fact that many of the athletes making up TeamGB will have relied on Disability Living Allowance throughout their lives in order to do what they have done and become the athletes they have succeeded in becoming.

DLA is not an out of work benefit, it is a benefit helping disabled people to live lives with some possibility of fulness, not to mention to keep them alive. Disabled and chronically sick people need extra money just to keep existing with their disabilities. Transport, heating, technical aids, carers. The list goes on. And yet Atos have been tasked with assessing people on this benefit - even those given a lifelong award, with doctors' support - with the end view of reducing it by 20%. Even though fraud rate has been assessed at around 0.5%. Figures don't add up? Go figure....

I'll post a video explaining it more, for those who are interested. This video explains Atos' role more clearly, against the backdrop of a protest by disabled people that took place yesterday.

Equally concerning me in all this, and running throughout it, is the attitudes being fostered towards sick and disabled people. While it's great to comment on how the athletes have come through difficult situations and achieved incredible goals, there is an underlying rhetoric taking place which fits nicely with Atos' seeming aims. Basically, that disabled people can achieve such things, so if you're not, you're not trying hard enough. You're so much use, you're a scrounger, because you haven't given it your all, like these people, you haven't triumphed over your own personal adversity. You're sick: So what? So are they!

It's a worrying trend which is intensifying through society, from welfare cuts to newspaper articles. But think about it. You wouldn't think this about an able bodied, healthy person, that because they weren't running like Mo Farah they weren't trying hard enough? It's scary when you feel judged on being ill and judged even more on not trying hard enough to not be ill. Or to be fabulous anyway, within your illness.

I sometimes wonder if this attitude is somewhat prevalent in the church, too. The whole 'pull up your socks and get on with it' thing. Amidst praising the triumphant, we need to remember those who, for whatever reason, simply cannot triumph, or at least triumph in the way we may want them to. Remember those who are too sick to work, and even too sick to go out, and who are stuck there, and no amount of talking up what people 'can' do as opposed to 'cannot' will help them be able to. It also leads into the whole area of usefulness and uselessness. Seeing reports of such bravery can be very inspirational and can encourage someone to go for it; but we need to remember that for some it simply feeds into their own sense of uselessness. I will never be able to do something like this, I will never be able to work, I will never be able to contribute. I am useless.

I've had times of thinking like this (still do, on a fairly regular basis) and know how it is to be trapped in a body that simply won't. Simply won't ever be a body of an athlete, whatever I do, however hard I try. It's not possible for me. But does that make me of lesser worth than the athlete? Society is at risk of beginning to categorise sick and disabled people: Those who can, those who can't, those who won't, those who are worthless. Does church do that too?

I know someone who doesn't....

New Year - New Hopes

This is me at the beginning of 2012. Not the best start, possibly, to my fortieth year on earth? In some ways, not really. But in others, perhaps I can see it as the best start, because if this lot works well I may feel better than I've done in months and months, and that is a hope I am reaching for right now. I may be somewhat naive, I know myself what I am like and how often I suddenly fall, even when having a 'well' time, but I still want to hope. I suppose if I didn't have that to reach for things would look much worse and maybe I wouldn't even get as better as I could do. Maybe. So I'll keep hoping for healthier times.

I'd love to get some exercise this year, if I could. Early last year my physio put me on a pulmonary rehab course which I found so helpful. It wasn't the most rigorous of exercise and you weren't going to break any records, form any muscles or lose much weight, but it was the whole thing I think of starting to take some control again of your body when it had been so battered. I love the thought of being able to do that once again. Until the next battering, I suppose...but I won't give up, and stop. I might even get out that dusty Wii fit...

A big hope for me this year is that I will finally write my first book. It's been forming for a long time now, and I think I just need to go for it in order for it to come together. Themes of healing, the church and disability, wholeness/'usefulness', all that kind of stuff. I'm excited about starting.

And then of course there is our work here in Priorslee....I'm excited about what this year will bring.

So bring it on - good and bad. And hopefully I'll not need those IVs again soon.

Pioneers R Us!

Since the Adventurous Pair are back at school, and I no longer have the excuse of the mania of school hols and moving, I thought I had better re-start this neglected blog.

I wanted to as well because I am so excited about our new life here in Priorslee. It's mixed with so many emotions, sadness at leaving Stoke amongst them, but it's great to see how so many of the little things have worked out so well so far <almost like there's a God, or something ;D)

Last night Adventure Bloke officially became a pioneer minister, although he thinks that he too should have been presented with a large bag of maltesers to 'make him strong for the task ahead', as Adventurous Pair were, to their delight (especially after being told they were being given rice pudding.) The Licensing Service was awesome, I think, although I may be a leetle biased. All those who took part did a sterling job and made it into such a powerful and inspiring evening. Pioneer Ministry is a very different animal to being a vicar in an established church, and it was great that the service reflected that. I loved that we were commissioned as a family, God's call is on all of us.

But now we are Pioneers, what do we do next?

Please phone or text with any answers.....:D

We can't wait to get stuck in, actually, and see what God's up to here in Priorslee, who's in it with us, where we go from here. Bring it on.

Is God a User?

There is a certain phrase prevalent among Christians (particularly a certain 'flavour' of Christians) which comes under what I call Christian Jargon-ese. Now this phrase is something I never really thought about or worried about until Adventure Bloke wrote his most excellent Master's Thesis. As I began to read his notes and engage with the subject I realised that the phrase was sitting more and more uncomfortably with me.

I therefore would like to issue a challenge to my Christian friends who find themselves using this language. Do the words 'God can use you' or 'God uses anyone' or 'God used me' (and so on) ever creep into conversation? Read a good many Christian books and you will find these words oft repeated. The thing is, the words are used <no pun intended> with all good intentions. The premise behind the language is of God loving us so much God works through each of us, whatever our gifts are. But I would like to look beyond the intention and examine the language a little.

Now, imagine you see the words 'he used her' in a newspaper article. What would be the emotion coming to mind? Would it be positive? No, because the phrase in common usage means something entirely different. When somebody is 'used' it usually means they are 'abused', 'discarded', 'worthless'. Hardly feelings we would like to be associated with how God sees us. The verb 'to use someone' is in fact incredibly rarely describing a positive event. It is much more often telling a story of brokenness, of rejection.

So where do we get it, and why do we say it? You may be surprised to find out that the bible never once tells of God 'using' somebody. Nothing. Nada. God working with, yes. God loving, even more. But using? Never.

What do our friends who don't share our beliefs think if they hear this language? Society pretty much only uses this verb with negative connotations attached. So banding round phrases such as 'God has used you so much!' may be having the opposite effect to what is intended. Who, after all, wants to be 'used?' (and my dear friends who are not Christians, I would love to hear your opinions on this :))

Now, one problem lies in the language, what we really mean, and how we can say it. I was talking with a dear friend the other day about this issue and we were sharing how easily it is said and how we need to find alternatives. We decided that a positive and meaningful alternative was possibly 'God partners with us.' This is a powerful representation of God working with us, God seeing us as valuable and giving us the choice to surrender to him so he can partner with us. Almost breathtakingly simple? Some of you, however, may be thinking about how 'God using me' language reflects us being totally open to God, saying for example 'I am totally giving my life to God, so I invite God to 'use' me however he wants.' Again, the intention works, and it can be difficult to find language that does the same job, but I still think it remains problematic. How can we say that God loves us and uses us in the same sentence? Can a God who loves be a God who uses? Well yes, if you say that 'uses' merely means God graciously working within what we have invited God to do. But no, if we want to engage with those around us and respect what such language may feel like to them.

I think there is another aspect to this too, something on a deeper scale. I wonder if the wording 'God can use us' implies that 'we need to be useful.' And I wonder if there is an unacknowledged presumption at the heart of it; a presumption that says 'we can only be used if we are useful', ie God can only work with us and through us if we are doing, if we are being of use in some way. Society reflects this to a certain extent - how many of us find that the first thing we are asked is 'what do you do?' From the point of view of someone who doesn't 'do' an awful lot due to illness, this can be destroying. And to wonder if I cannot be used by God because I cannot be useful, because I am Invalid, is a dark and scary kind of pattern of thought. Yet I think there is a subconscious level at which this does happen.

So I challenge you (and me): Chuck out the 'use' and chuck out the 'useful'. Let's liberate ourselves from the expression which may only be viewed negatively by some, and which may be at the root of insecurity for many followers of Christ. Let's be partners with God. How amazing would that be?

These are my very unformed thoughts, and I could witter for a while yet, but will stop here for now. I am fascinated by this issue and would be interested to hear thoughts on this, even those that tell me not to be so daft and over-thinking ;)

So, I wonder what other Christian Jargon-ese should go into Room 101? Answers on a postcard....

Messy Church?

So, we've recently started Messy Church which is around once a month at the moment. But what is it? The Messy Church website gives a description of the concept behind it, but I imagine it varies from place to place. For us we want to bring families together for fun and food with some learning about God stuff flowing through it. Mainly though to build community in our area. One of the feelings that is expressed in our area is concern at lack of community, so how can the church contribute to building it up once again? Initiatives like Messy Church may only be a drop in the ocean - but small steps go a long way if there are enough. Last time we had the mayhem of tent making, with children and parents getting increasingly involved (and competitive about their tents!)